Another day, another test.

Tomorrow morning we are back to London for the 3 month checkup! Fingers crossed that W is still in remission and that the CAR-T therapy is still working.

Physically he looks great! He has more energy than he has had since last November, he is able to eat again and it seems he has stopped losing weight! All good signs! He has some of his strength back and I have been urging him to do some exercises to build and keep his strength up so that when we do go through with the stem cell transplant he will be able to tolerate and bounce back faster.

On the kinky front, Bear and I have been enjoying some intense and much needed reconnection to our way of life. The last week and a half not withstanding! lol Life never fails to step in the way but we are not backing down, my health is usually the culprit followed by W’s doctors appointments and procedures. We certainly can’t do anything about those things but we can work around them! *smiles*

Our dive into M/s has had us trying out some kinky ideas that I never would have thought we’d be interested in. Never say never I suppose. Then again, if you look at the list of ‘yeses’ and ‘hard limits’ when we started out and the list now, you’d see some stuff has simply switched columns!

We’ve (or should I say, I’ve) gotten smart about our kink and the simple fact that we make it our own! I know, I know it’s something we hear and say all the time but just like most things in life – the idea is simple, the application for some reason seems so much more difficult!

It’s opened up a bunch of new kinks that we are/and have been trying and has made our kinky travels that much more enjoyable. I think Bear has also finally found some acceptance and peace in the life that we have chosen. I think he has finally just let himself be …. that, plus my new take on communication, too!

Basically – radical honesty! Thought we were doing that before, found we could actually do more! Always learning, always trying, always talking ….

That’s what we’ve learned and that’s what’s been making even this current life situation manageable!

Till we meet again …. ❤

Just a few updates!

As I mentioned before, we’ve been home since the 1st of July, goodness it’s nice to be home!! W and I have spent probably the last 4 1/2 out of almost 8 months in hospitals. Him in a bed of course and me mostly sleeping in chairs! The stay at Sick Kids did afford me the use of a bed/couch area in his room which was such a blessing! I don’t think my back and neck could have taken too much more! lol

The first week was pretty basic, just some low dose chemo to prepare but the second and third week were hellish! I do not wish that on anyone, to watch my child go through it was surreal and scary as f*ck! I knw I don’t normally swear but ….. I just can’t even begin to explain the feelings.

He lost the ability to use words properly, what he wanted to say and what was coming out was all jumbled for a few days. He couldn’t see much, his face was swollen and his eyes bulging out and hurt like hell. He couldn’t even walk well or do the simplest of tasks without getting confused and turned around.

Trying to get him to the washroom was something else! Let me tell you. He is bigger than me, taller and heavier and he could figure out how to sit or place himself properly etc. I’ll spare you the rest of the details but I’ll say that was the most afraid I have ever been in my entire life.

I don’t scare easily, I don’t tend to lead with emotions. I’m pragmatic and no nonsense, I get to the heart of the issue and take care of business. With a clear head and a plan, everything works out as it should ….. not this time!

Thank god for the nurse who was with us those few days, she even came in on her day off for an extra shift just to be on W’s care. I think I may have very well lost it if not for her. Bear was not with me as he was travelling back to work Mon to Fri and then with us on the weekends. While there he also stayed in the apartment while I was in the room with W over night.

The worst night I did get close to calling him in, it was a weekend and he was there …. I doubt anyone would have stopped him at the door. They are quite understanding there, I just can’t say enough for those folks working everyday to help kids and parents through this. Anyway, i got about 45 mins sleep that night and was very glad to see him (Bear) in the morning!

The first weeks were hard but the next few weren’t as bad. We were still stuck in TO but at least W and I were back at the apartment by then. trips back and forth to the hospital a few times each week but it was a 10 min walk away and we had a wheelchair for W, so it worked!

By the first we got the all clear once more, the bone marrow and spinal fluid were all clear of cancer and the CAR-T cells are doing their magic destroying all leukemia cells.

We are back to our regular oncologist now and the following Tuesday when we went for a check up he informed us that the next step should really be a stem cell transplant to make sure the marrow starts producing ‘good’ cells not cancer cells going forward. Basically, it our best way to try to ensure no more relapse!

Say what now … !?!?!? We were not expecting that. We thought it would be checkup and such but as long as the cancer was gone, W could be done with all the big procedures. We all got a bit of a surprise! Nothing finalized yet but we go back on the 5th of August and I imagine we will get more clarity then.

This will mean another trip to TO and hopefully back to Sick Kids. We know the people, know our way around AND I can stay with W over night no questions asked. His panic attacks are all but gone and he has made huge strides in his anxiety BUT it’s not going to just magically disappear. Any time I was away for more then an hour or so he would text and start asking when I’d be back. I’m going to go out on a limb here and assume he is still not ready to be in hospital over night without me. But that’s a problem for another time …

If I understand correctly the stem cell transplant should be done around 3 months after CAR-T in these cases which would see us back to TO likely the beginning or September, since his CAR-T transplant was June 3rd.

In between all this Bear and I have taken any opportunity we can to strengthen out dynamic. I think it’s probably more intense now than it had been in a long time, maybe even ever really. Since we were moving towards a more M/s centered feel before all this began, we have picked up again in that same vein.

I’ll take it while I can, fill up on that energy that keeps me balanced while we are afforded the time and space to do so and let it carry us through the days we focus solely on W and his recovery. It’s a strange dance back and forth some days but we (the 3 of us) are all getting what we need and when.

I can’t say I can ask for more at this time. 🙂

Hope you are all well and happy on this Monday morning!

Of lessons learned.

Since I’m sitting here on my own again, sleeping ‘alone’ again and waiting til the next doctor comes calling or the next time W needs something, I find my mind wandering.

Despite all the twists and turns of our current journey we have still tried to keep up with some of the comforting things we use in our kinky lives. My health issues will often complicate that too … oh joy! Regardless, we often try to revisit things of the past and try to implement them once more, sometimes tweaked and sometimes just try again.

A collar at bed time is one of those things. Bear has a leather collar he likes to use for bedtime and my bunny chain 24/7. My condition will often make it so that I can not regulate my body temperature and I find that even something as small as a collar will cause me to overheat. Last summer it had to come off because I was spending too many hours as a furnace and not sleeping. To be honest I overheat so much that even Bear was being kept awake! Humm,maybe that was 2 summers ago! Yikes!

Anyway, recently after having returned home from the hospital stay Bear decided to start using the collar again, for as long as we could this time. It’s not yet summer weather here so it was a good time to try. That and our minds could really use something calming to focus on at bed time.

We used it for a short while with no real issues but one night I seemed to be having a hard time breathing. Something was making me cough and it felt like my breathing was being restricted. Guess what? It was!

Bear decided that it was time to remove the collar and figure out the details in the morning after a good night sleep, his hope was that it was the collar and not some other issue causing me to choke and gasp for air. I didn’t like it but in the middle of the night, in the dark as he tried to remove the collar it seemed to somehow be stuck. I mentioned I could try since I could feel the where and what and be sure not to make it worse. He agreed and I soon figured out that the rabbit choker had somehow wrapped up and around the leather buckle and end flap … it was twisting in such a way that it was literally strangling me!

Now that was a first!! We’ve had an issue in the past with just a linked chain and that quickly became a no-no for bed or any other unsupervised wear but never with this! Anyway, it was removed and the next day bedtime came and went without much fuss. The rabbit is always on, that is the main ‘collar’ of choice for Bear, that and my cuffs that never leave my body.

I was a bit confused and a bit unsettled I guess you could say, that he hadn’t chosen to try again or try something else. We do have a few options for collars that we have played with along the years. I had hoped he would pick one, but he hadn’t.

The next night came and it was the same scenario. And the next … I half thought about saying something, questioning him BUT I didn’t. Not because he doesn’t like it, he’s never once not answered all my questions and concerns, but because something in me told me I didn’t need to. I shouldn’t really because I figured he would do whatever he felt was best and tell me in his own time.

A few days later when once again getting ready for bed, he undressed me as he always does but before tucking me into bed he brought out a brand new collar he had found. It is black and rounded. A very small profile compared to the others with no hooks or D rings to snag a sleeping rabbit! *smiles*

I am rather proud of myself for not pressing and pushing before he was ready to handle the situation. With all the other stressors in our lives right now it would have been easy to fall into that mindset of pushing and pressing the issues that I want dealt with instead of letting him lead the way.

I’m much happier in this case than I would have been if I pressed him on it anyway. Now, if I can just get back home to wait for him to place it on me again …. *smiles*

Detrimental?

Has my D/s dynamic been detrimental to myself and my mental fortitude?

I was never in ‘need’ of anything or anyone before, but these days I find that I feel an absence if he’s not there. If he’s not aware, if he just doesn’t get it ….

I’m an adult, I know that sometimes things go sideways, sometimes things need doing or sometimes people need time. I get that. But I never needed anything, outside of myself, ever!

Now that I’m dealing with Leukemia, relapse AND and stressed out Bear ….. not to mention mental health issues for W, and trying to find the right words to say so that they will just listen and not question when I say he requires a support person etc etc .

I find my down fall to be that I expect a certain response or at least concern from a certain Bear – and he does the opposite.

I get it, I do, it’s stressful for him too, of course!! But without D/s I wouldn’t have had this need.

Yes this is a BDSM D/s site, but I want to tell the truth of what it takes to be a submissive. For some of us it’s like we’ve given away our super powers. Is it worth it?

Lost

I’ve noticed lately that I’ve been feeling a bit lost in my day to day. I mean I feel like I’m wandering through the day instead of living with purpose.

Obviously I have a purpose when it comes to my son and all the appointments, medications, physical and mental health needs etc. I feel rather more of a nurse lately than anything else. Well a mom of course, that never goes away …. I’ve also just started working again – babysitting basically for before and after school kids here in my neighbourhood. That is a nice change from the last 5 months but I’m not sure how long before I need to take a break again.

We had a video conference with W’s doctor on Tuesday and it seems that nothing we have tried so far has been able to clear the cancer from his brain/spinal fluid so we need to try something new! I’m relieved that there are options, or at least we think so, he’s gotten a referral but we haven’t heard back as to whether or not he has been accepted. However, this option would have us once again in hospital for an extended period of time.

I’m not sure if it’s an inpatient treatment or outpatient but this hospital is in our province’s capital and over 4 hrs away! As such I find myself preparing for the mental focus and strength to be away from home again, possibly have to advocate for the right to stay by his side so that he doesn’t have panic attacks and refuses treatment and to be on our own this time because there is no way Bear can travel back and forth 9hrs per day! It just wouldn’t make sense. We might be able to get him accommodations but we might not.

As a ‘planner’ it really makes me unsettled to have so many questions and no way of receiving answers.

As a submissive it makes me ‘lost’ to have no real set of kinky rules or rituals to adhere to. No set list of chores to be of service. No real intentional dynamic to concentrate on. We keep trying but every effort is interrupted by bad news and new directions, medically speaking. My own physical health has also been an issue ……

Now, I’m not complaining about having to support my child, I think anyone in the community would know that that’s not an issue, it’s just the gap that it leaves behind in my D/s life is felt! We had moved in the direction of a Master/slave dynamic as well which for us was more intentional and powerful (!?!?) feeling, Not sure how to describe it but to say that it’s more intense for more hours of every day. We haven’t moved away from Bear and bunny or any other aspect of our dynamic we simply added on to it. I’ll have a whole other post on that if I want to explain it properly! lol

I’ll leave you with my inspiration for making the move in this direction:

It’s true that I have very rarely ever been punished for anything and I think this quote fits my way of being very accurately. I don’t do things worth being punished for because my intention with Him is always to please.

Anyhow, I hope you are all having a great day and I hope to be back soon with news. For now we wait to hear about the referral and try to piece together any fragments of our kinky lives that ‘life’ hasn’t put on hold!

Even when we’re low-key

My life might not be all kink and BDSM right now but it is still ‘us’. Coming back here and reconnecting with old friends, and some new, has reminded me of that.

What I like about having a Bear around is that I have the privilege of saying ‘i can’t right now. i need you to do it …’.

I have never in my life depended on, or trusted, anyone else with my needs, my wants, my anything. Once we added D/s to our lives that truly changed for me. I had already picked him, obviously because we had been married 15 years by that time. Life and stress had started taking its toll and we needed a change, we needed to reconnect. D/s did that.

So … we might not be all whips and chains right now but we are ‘WE’. And I still have someone I can go to when I – JUST – CAN’T – right now.

Tomorrow is a busy day, back to the hospital for treatment for W and standing by him in support for me. It’s the first time we are doing this as out patient and I’m not looking forward to trying to find my way around! LoL I’m pretty good at getting ‘turned around’ and not so great at find the right hall to go down or the right door to enter. That’s normally a ‘Bear problem’ but covid means only one of us can accompany W. Directions are not my forte, but being his mental health support system is.

Wish me luck! *smirk* Happy Thursday, friends. ❤

Hello

Hi folks, sorry I’ve been away again. Kink has been on the backburner for a little while, more or less, so I haven’t had much to think on or write about.

My hEDS has been in a flare up for a while and it seems that I also suffer from MCAS – yay me! Basically I have been crazy sore, gaining bruises and swelling left and right and now having allergic reactions to EVERYTHING, including new and interesting kinks that we had decided to try and now I can’t have anything on my body or skin.

Pain play and impact play/BDSM are still hard to come by due to first privacy and secondly, my illness. I should see a doctor but mine seemingly knows nothing about this condition, at least not the last time I spoke to him over a year ago! *fumes* But that’s for another blog site ….

One month ago we also lost our German Shepherd, that was hard of course.

So I’m still here, we’re still here. Still trying to get on with life as are all of you too I’m sure. Crossing my fingers that this flare will end, or at least settle down enough that we can get some sort of energy to play! I’m trying not to focus on what has been missing and focusing instead on what (hopefully) lies ahead.

I haven’t really had any sexual appetite lately, I bet you can guess why that might be! LoL Not entirely sure what to do about that. *shrug*

Happy Friday my friends! Stay safe, stay kinky if you can too!

Understanding

With time and experience comes understanding I would say. I think I now understand the ebb and flow of it all, for us.

I’ve heard the terms over and over again of course, it’s a common theme if you search those who have been in the lifestyle and together for a long time, like we have. I’ve heard it but I don’t think I quite understood it in regards to our own relationship. I think I do now!

It’s not a failure, it’s not something to be worried over or stress about. It’s just a natural circumstance when you have a ‘real’ life and challenges out there to contend with as well as your BDSM dynamic.

That’s not to say it’s to be ignored, no I’m just suggesting that instead of internalizing it as a failure somehow, I choose to look at it as a pit stop, to take inventory of what I have in my submissive bank and what I need. Then to take steps to fill missing parts through diligence and intention. And most importantly – communication!

Things are looking good here for us, the kids seem to be on track and so are we. How are you all? I’m investing some time each week to post, it helps me to keep in the mindset I need to stay focused on my submission. What do you do to stay in the groove??

Happy Saturday, stay kinky! LoL

In need of a w[h]ine night!

It doesn’t happen often but I do sometimes miss the action and comradery of having a group of like minded people to talk to. In real time ….

I find it helps to keep motivated when it comes to kink and to my submissive journey. This solitary kinky existence leaves us both lacking in motivation and frankly, flat!

Photo by cottonbro on Pexels.com

Not really sure what to do about that. All past attempts at real time chat, and even pen pals, have fizzled out. My personal energies towards kink have also practically fizzled out. I tend to be the one with the imagination and spark to get things started and when I don’t, it doesn’t ….

Gets to be pretty tiresome I admit. It’s a personality thing with him I know but it would be nice if I wasn’t always the one who needed to add fuel to the proverbial fire.

That is all. 🙂

What a strange summer … and submissive mindfulness.

This summer break has been a really odd one for me. I think things have been odd for many people with the pandemic and all the changes that it has brought! But, that’s not what I’m talking about.

For me, this was to be a ‘back to normal’ summer. Normal in terms of time and holidays and having time to myself! Last summer I ended up having to work because the littles I take care of during the school year had no where to go if their parents were ‘essential’. Sure there were spaces for childcare made by the government but they were few and none here in our town!! :O So instead of taking my summer off I worked.

It was hell on my body and that didn’t help my submission either. By the time the day was done and everyday chores were done so was I! *chuckle* This year I took the summer for myself again.

It’s been a month and a half now and it feels like I haven’t started my holiday yet! Mentally and physically I just don’t feel ‘right’. I don’t feel rested, my body is still struggling to get back to my normal, I’m still not ‘well’. Even with all the distancing and the ‘hibernating’ in the house I still seem to catch a ‘bug’ more often than not. It’s not covid but it still hits me hard due to the hEDS I suppose. My immune system is just not up to the job!! I keep hoping that if I can finally get some rest and back to a regular exercise program I can get my health back ….. but I really don’t know if that will come true.

For now I’m trying to not get down mentally and to enjoy what few minutes I do get but I may be starting to lose that battle. The closer it gets to September and school once more the less I feel like I’m going to have my ‘summer break’ at all. It hasn’t helped our kinky dynamic either. We make plans and have rituals set up and then they need to be changed or stopped due to ‘life’ and illness.

I like to have rules and rituals set up, it helps me to get my mindset right where I like it. It seems to make things feel more real, more intense. When those are more suggestions than rules it gets harder for me to stay focused. It’s not impossible but it certainly is more work mentally!!

I keep going back to mindful submission when I notice that it’s more of a daydream than a settled feeling. I find that the key to my submission is allowing those thoughts and feelings to flow freely inside of me. I try to tap into that well of knowledge that I have gained over the years and I let those thoughts and feelings out.

When I adjust my outlook my perception of the things he does also changes. Domination and leadership doesn’t need to be harsh or loud, it can be understated and subtle. When I pay attention I notice his dominance coming through more, that feeds my submission and so it comes through to him, Then he again notices too … and the cycle continues.

I think that when my submissive thoughts and feelings are flowing freely his dominance is fed and so it too flows more strongly. The reverse is true for me as well. When we are in the heights of our dynamic it happens without notice. When things are a bit quieter for whatever the reason, it takes some effort to tap into but it’s still there.

Submission is a choice, it’s up to me to chose to let it flow. To continue the cycle …